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Support Groups
Survivorship
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 Tools
for Coping with Childhood Cancers
Survivorship Issues
of Childhood Cancers
Content:
Survivorship Issues
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Active Survivor Network
dedicated to promoting improved quality of life for cancer survivors
through physical fitness and health lifestyles
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Beyond the Cure:
The
comprehensive survivorship Web Site sponsored by the National Children's
Cancer Society contains
Information on all aspects of survivorship education
through teleconferences and national survivorship conferences.
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Bone Marrow
Transplant Resources Learn Almost Everything
You Need to Know about Your Bone Marrow Transplant or Stem Cell Transplant.
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Cancer
Survival Toolbox® free audio program designed to help cancer survivors
and caregivers develop practical skills to deal with the diagnosis, treatment
and challenges of cancer.
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Candlelighters:
provides education, support and advocacy for survivors, families and
professional.
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Children's Brain Tumor
Foundation mission is to improve the treatment, quality of life and
the long term outlook for children with brain and spinal cord tumors through
research, support, education, and advocacy to families and survivors
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Fertile Hope
dedicated to providing reproductive information, support and hope
to cancer patients and survivors whose medical treatments present the risk
of infertility.
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Lance Armstrong Foundation: Young Adult Alliance committed to
promoting research and the investigation of the problem, serving as a voice
for the issue and promoting effective solutions.
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National Coalition for Cancer
Survivorship: is the oldest survivor-led cancer advocacy organization in the country
and a highly respected authentic voice at the federal level, advocating for
quality cancer care for all Americans and empowering cancer survivors.
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Outlook: Life Beyond Childhood
Cancer: provides an innovative and unique resource that addresses the issues of
childhood cancer survivors, provides information and support to families and
professionals and builds a bridge of support between current patients and
survivors.
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Navigating the New Normal
program to provide support and education
for individuals between the ages of 18 and 40 in the Philadelphia region who
are living with cancer or a history of cancer
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Pediatric-Oncology
Resource Center: A program of ACOR for parents of children with
cancer, the Web site provide support and information on survivorships,
educations and cognitive late affects
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Planet Cancer young adult-focused
community offering survivor retreat programs, social networking, and online
forums with real world advice and inspiring stories.
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Prepare to Live
source of Help, Hope, Information and Inspiration for Young Adult patients,
survivors and caregivers coping with cancer
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Survivor Alert
what young adult
childhood cancer survivors can do to stay healthy as they rebuild their
lives after treatment
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Survivorship
and Support program at the Memorial Sloan Kettering Hospital in NYC
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The Ulman Cancer Fund for Young Adults - Voice of Survivorship
The Voice of Survivorship is a portal of hope,
sharing, determination and outright courage. It allows cancer survivors and
loved one's from everywhere to share their stories of triumph, sorrow,
perseverance, and resolve.
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Young Adults Surviving
Glioblastoma resource for brain tumor survivors
Young Adults Affected by Cancer
I'm Too
Young For This! : Hear what they have to say about their site:
"Got cancer? Under 40? Sucks, huh? Get busy living! I'm Too Young For This!
is a global support community for young adults affected by cancer who get busy
living and rock on. We use music to make it hip to be a survivor and talk about
stupid cancer by providing 'one-stop' access to hard to find resources, peer
support and social networks." ..."We are a global social network of young adults
affected by cancer which includes people who were between 15 and 39 when they
were first diagnosed along with survivors currently aged 15-39 who are long-term
pediatric survivors."
Support Groups for Survivors of Childhood Cancers
- 2bMe: A site
for teens with cancer to address issues related to social issues related to
treatment and post treatment issues
- Cancer Care:
free professional-support services for anyone affected by cancer
- Groop
Loop:
Professionally Mentored online Teen support groups and discussion board for
educational and informational purposes
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Planet Cancer: a community of young adults with cancer that shares
insights and laughs and explores fears. A safe place for teens with cancer
(and their parents) to build an online community and find support
- RealTime
Cancer Online community
forums, survivor retreats, discussion rooms, blogs and informational links
for adolescents and young adults with cancer.
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Teens Living with Cancer: A site for teens with cancer "who have a
lot of living to do,"
Scholarships for Childhood Cancer Survivors
Smoking Cessation for Survivors
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American
Institute for Cancer Research: supports research on the role of diet
and nutrition in the prevention and treatment of cancer
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Cancer Nutrition Info: site for cancer patients and survivors with
information on keeping self healthy before, during and after cancer
treatment
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Fruits &
Veggies More Matters: this site emphasizes eating fruits and
vegetables to maintain healthy weight, and reduce risk of many diseases
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My
Pyramid Plan: use of the USA food pyramid to create a personal
eating plan with foods and quantities right for you
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Coping.org:
Tools for Coping
with Life's
Stressors
Coping.org
is a Public Service of James J. Messina, Ph.D. & Constance M. Messina, Ph.D.,
Email: